Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research
Genomics, Society and Policy volume 1, Article number: 29 (2005)
The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining and clarifying the notion of benefit-sharing by focusing on its justifications. I will argue for certain qualifications and limitations in using this concept in specific and universal contexts.
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Simm, K. Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research. Life Sci Soc Policy 1, 29 (2005). https://doi.org/10.1186/1746-5354-1-2-29