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Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research

Abstract

The Human Genome Project and the related research and development activities have raised heated discussions around some very basic ethical and social issues. A much debated concern is that of justice in human genetic research and in possible applications, especially pertaining to questions of just benefit-sharing - who and based on what sort of argumentation has the right to require benefits arising from research and discoveries, and what can even be considered as benefits? In what follows I will be examining and clarifying the notion of benefit-sharing by focusing on its justifications. I will argue for certain qualifications and limitations in using this concept in specific and universal contexts.

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Open Access This is an open access article distributed under the terms of the Creative Commons Attribution Noncommercial License ( https://creativecommons.org/licenses/by-nc/2.0 ), which permits any noncommercial use, distribution, and reproduction in any medium, provided the original author(s) and source are credited.

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Simm, K. Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research. Life Sci Soc Policy 1, 29 (2005). https://doi.org/10.1186/1746-5354-1-2-29

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Keywords

  • Genetic Research
  • Global Public Good
  • Genetic Database
  • Nuffield Council
  • Human Genetic Research