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Table 1 Information required by consumers to make an informed decision about DTC testing (H. Skirton et al., 2012)

From: Direct to consumer testing in reproductive contexts – should health professionals be concerned?

Information related to genetic condition

Information related to test

Security issues

General information about genetics

Purpose and nature of the test(s)

Confidentiality of results

Availability of treatment or lack of treatment

Risks associated with testing

Management and care of the sample

Implications of the result

Clinical utility of tests

Subsequent use or storage of sample

Possible impact on insurance or employment

Scientific evidence supporting use of tests

Quality regulation of the laboratory

 

Availability of test-associated counselling by health professionals

 
 

Format and presentation of results

 
 

Sources of independent information