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  1. An article published in the UK Guardian on 11/10/2013 with the headline ‘Genetics outweighs teaching, Gove advisor tells his boss’ reported a leaked document written by special advisor Dominic Cummings to the ...

    Authors: Madeline Crosswaite and Kathryn Asbury

    Citation: Life Sciences, Society and Policy 2016 12:11

    Content type: Research

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  2. The colonization of a new planet will inevitably bring about new bioethical issues. One is the possibility of pregnancy during the mission. During the journey to the target planet or moon, and for the first co...

    Authors: Haley Schuster and Steven L. Peck

    Citation: Life Sciences, Society and Policy 2016 12:10

    Content type: Research

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  3. Emerging science and technologies are often characterised by complexity, uncertainty and controversy. Regulation and governance of such scientific and technological developments needs to build on knowledge and...

    Authors: Ellen-Marie Forsberg, Barbara Ribeiro, Nils B. Heyen, Rasmus Øjvind Nielsen, Erik Thorstensen, Erik de Bakker, Lars Klüver, Thomas Reiss, Volkert Beekman and Kate Millar

    Citation: Life Sciences, Society and Policy 2016 12:9

    Content type: Research

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  4. Donors to biobanks are typically asked to give blanket consent, allowing their donation to be used in any research authorized by the biobank. This type of consent ignores the evidence that some donors have mor...

    Authors: Raymond G. De Vries, Tom Tomlinson, H. Myra Kim, Chris D. Krenz, Kerry A. Ryan, Nicole Lehpamer and Scott Y. H. Kim

    Citation: Life Sciences, Society and Policy 2016 12:3

    Content type: Research

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  5. Data sharing presents several challenges to the informed consent process. Unique challenges emerge when sharing pediatric or pregnancy-related data. Here, parent preferences for sharing non-biological data are...

    Authors: Kiran Pohar Manhas, Stacey Page, Shawn X. Dodd, Nicole Letourneau, Aleta Ambrose, Xinjie Cui and Suzanne C. Tough

    Citation: Life Sciences, Society and Policy 2016 12:1

    Content type: Research

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  6. Human-animal chimeric embryos are embryos obtained by introducing human cells into a non-human animal embryo. It is envisaged that the application of human-animal chimeric embryos may make possible many useful...

    Authors: Hiroshi Mizuno, Hidenori Akutsu and Kazuto Kato

    Citation: Life Sciences, Society and Policy 2015 11:15

    Content type: Research

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  7. Unanticipated situations can arise in biobanking. This paper empirically documents unexpected situations at the anonymous biobank ‘Xbank’. Firstly, Xbank received an unexpected and significant quantity of tiss...

    Authors: Neil Stephens and Rebecca Dimond

    Citation: Life Sciences, Society and Policy 2015 11:14

    Content type: Research

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  8. The article traces the genealogy of the Minimum Information About Biobank Data Sharing model, created in the European Biobanking and Biomolecular Resources Research Infrastructure to facilitate collaboration a...

    Authors: Sakari Tamminen

    Citation: Life Sciences, Society and Policy 2015 11:13

    Content type: Research

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  9. This paper situates the public debate over the use of living animal organs and tissue for human therapies within the history of experimental islet transplantation. Specifically, the paper compares and contrast...

    Authors: Myra Cheng

    Citation: Life Sciences, Society and Policy 2015 11:12

    Content type: Research

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    The Erratum to this article has been published in Life Sciences, Society and Policy 2016 12:2

  10. Innovations in information technologies have facilitated the development of new styles of research networks and forms of governance. This is evident in genomics where increasingly, research is carried out by l...

    Authors: Jane Kaye, Dawn Muddyman, Carol Smee, Karen Kennedy and Jessica Bell

    Citation: Life Sciences, Society and Policy 2015 11:10

    Content type: Research

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  11. This review article discusses Melinda Cooper and Catherine Waldby’s recent book, Clinical Labor. Tissue donors and research subjects in the global bio-economy (Duke, 2014), as a topical contribution to the litera...

    Authors: Christian Haddad

    Citation: Life Sciences, Society and Policy 2015 11:9

    Content type: Book review

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  12. In European science and technology policy, various styles have been developed and institutionalised to govern the ethical challenges of science and technology innovations. In this paper, we give an account of ...

    Authors: Laurens Landeweerd, David Townend, Jessica Mesman and Ine Van Hoyweghen

    Citation: Life Sciences, Society and Policy 2015 11:8

    Content type: Research

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  13. The organ shortage is commonly presented as having a clear solution, increase the number of organs donated and the problem will be solved. In the light of the Northern Ireland Assembly’s consultation on moving...

    Authors: Mairi Levitt

    Citation: Life Sciences, Society and Policy 2015 11:6

    Content type: Research

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  14. This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? W...

    Authors: Aaro Tupasela, Karoliina Snell and Jose A. Cañada

    Citation: Life Sciences, Society and Policy 2015 11:5

    Content type: Research

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  15. In order to study the relationship between genes and diseases, the increasing availability and sharing of phenotypic and genotypic data have been promoted as an imperative within the scientific community. In p...

    Authors: Mahsa Shabani and Pascal Borry

    Citation: Life Sciences, Society and Policy 2015 11:3

    Content type: Research article

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  16. This editorial presents the background for the article collection ‘ELSA and RRI’. It sets the stage for the topics discussed in the collection and briefly presents the different contributions. It concludes by ...

    Authors: Ellen-Marie Forsberg

    Citation: Life Sciences, Society and Policy 2015 11:2

    Content type: Research article

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  17. This article focuses on whether a certain form of consent used by biobanks – open consent – is compatible with the Proposed Data Protection Regulation. In an open consent procedure, the biobank requests consen...

    Authors: Dara Hallinan and Michael Friedewald

    Citation: Life Sciences, Society and Policy 2015 11:1

    Content type: Research article

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  18. Hip implants have provided life-changing treatment, reducing pain and improving the mobility and independence of patients. Success has encouraged manufacturers to innovate and amend designs, engendering patien...

    Authors: Matthias Wienroth, Pauline McCormack and Thomas J Joyce

    Citation: Life Sciences, Society and Policy 2014 10:19

    Content type: Research article

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  19. Within the space of a few years, the idea of Responsible Research and Innovation, and its acronym RRI, catapulted from an obscure phrase to the topic of conferences and attempts to specify and realize it. How ...

    Authors: Arie Rip

    Citation: Life Sciences, Society and Policy 2014 10:17

    Content type: Research article

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  20. The right to withdraw from research, along with the necessity of adequately informed consent, is at the heart of the post-Nuremburg code of ethical safeguards in biomedical research on human participants. As b...

    Authors: Karen Melham, Linda Briceno Moraia, Colin Mitchell, Michael Morrison, Harriet Teare and Jane Kaye

    Citation: Life Sciences, Society and Policy 2014 10:16

    Content type: Research article

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  21. England and Wales are moving toward a model of ‘opt out’ for use of personal confidential data in health research. Existing research does not make clear how acceptable this move is to the public. While people ...

    Authors: Mark J Taylor and Natasha Taylor

    Citation: Life Sciences, Society and Policy 2014 10:15

    Content type: Research article

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  22. Focused on the impact of stringent intellectual property mechanisms over the uses of plant agricultural biodiversity in crop improvement, the article delves into a systematic analysis of the relationship betwe...

    Authors: Fulya Batur and Tom Dedeurwaerdere

    Citation: Life Sciences, Society and Policy 2014 10:14

    Content type: Research article

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  23. In modern societies, rhetoric focused on body and health is common as biomedical sciences have taken a big place in people’s lives. They must enhance the society, health and living conditions of citizens. Solv...

    Authors: Laurence Perbal

    Citation: Life Sciences, Society and Policy 2014 10:13

    Content type: Research article

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  24. Two decades ago, in 1994, in the context of the 4th EU Framework Programme, ELSA was introduced as a label for developing and funding research into the ethical, legal and social aspects of emerging sciences and t...

    Authors: Hub Zwart, Laurens Landeweerd and Arjan van Rooij

    Citation: Life Sciences, Society and Policy 2014 10:11

    Content type: Research article

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  25. Taking people’s longevity as a measure of good life, humankind can proudly say that the average person is living a much longer life than ever before. The AIDS epidemic has however for the first time in decades...

    Authors: Cristian Timmermann

    Citation: Life Sciences, Society and Policy 2014 10:8

    Content type: Research article

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  26. As evidenced by high-throughput sequencers, genomic technologies have recently undergone radical advances. These technologies enable comprehensive sequencing of personal genomes considerably more efficiently a...

    Authors: Jusaku Minari, Tetsuya Shirai and Kazuto Kato

    Citation: Life Sciences, Society and Policy 2014 10:4

    Content type: Research article

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  27. The rare case of the patient unwilling to disclose genetic data to his or her family provides an opportunity to expand the atomistic conception of the autonomous individual in medical decision-making. Medical ...

    Authors: Michael Gallagher

    Citation: Life Sciences, Society and Policy 2014 10:7

    Content type: Research article

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  28. Recent events and advances address the possibility of cloning endangered and extinct species. The ethics of these types of cloning have special considerations, uniquely different from the types of cloning comm...

    Authors: Sariah Cottrell, Jamie L Jensen and Steven L Peck

    Citation: Life Sciences, Society and Policy 2014 10:3

    Content type: Research article

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  29. The introduction of open source in the life sciences is increasingly being suggested as an alternative to patenting. This is an alternative, however, that takes its shape at the intersection of the life scienc...

    Authors: Eric Deibel

    Citation: Life Sciences, Society and Policy 2014 10:2

    Content type: Research article

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  30. This article discusses outcomes of a dialogue conference on ‘The road ahead for ELSA in Norway: Issues of quality, influence and network cooperation’ held in Oslo in December 2012. Norwegian researchers in the...

    Authors: Ellen-Marie Forsberg

    Citation: Life Sciences, Society and Policy 2014 10:1

    Content type: Research article

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  31. Trying to separate out nature and nurture as explanations for behaviour, as in classic genetic studies of twins and families, is now said to be both impossible and unproductive. In practice the nature-nurture ...

    Authors: Mairi Levitt

    Citation: Life Sciences, Society and Policy 2013 9:13

    Content type: Research article

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  32. Human/animal relations are potentially controversial and biotechnologically produced animals and animal-like creatures – bio-objects such as transgenics, clones, cybrids and other hybrids – have often created ...

    Authors: Lonneke Poort, Tora Holmberg and Malin Ideland

    Citation: Life Sciences, Society and Policy 2013 9:11

    Content type: Research article

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  33. Synthetic biology (SB) has emerged as one of the newest and promising areas of bio-technology. Issues typically associated to SB, notably in the media, like the idea of artificial life creation and “real” engi...

    Authors: Angela Meyer, Amelie Cserer and Markus Schmidt

    Citation: Life Sciences, Society and Policy 2013 9:9

    Content type: Research article

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  34. In the life sciences, where large data sets are increasingly setting the stage for research, the role of bioinformatics is expanding. This has far-reaching consequences, not only for the way research is done, ...

    Authors: Jan van Baren-Nawrocka

    Citation: Life Sciences, Society and Policy 2013 9:7

    Content type: Research article

    Published on:

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